Data definitions

Data for HIV Lens indicators are obtained through publicly accessible UK Health Security Agency data

HIV Lens Data Methods

HIV Lens allows users to search surveillance data by ethnicity, sex, age and exposure groups. Unless otherwise stated all indicators are broken down by ethnicity, sex, age and exposure groups.

New HIV diagnoses

The data measures all new HIV diagnoses among adults (aged 15 years or more) in the UK, expressed as a rate per 100,000 population.

Late diagnoses

A diagnosis with a CD4 count <350 cells is indicative of a late diagnosis

Living with diagnosed HIV

The rate of people living with a diagnosed HIV infection per 1,000 people aged 15-59 years. The prevalence rate for England is 2.37 per 1,000 people.

Antiretroviral coverage

The number of people taking antiretroviral medicine at their last clinic attendance divided by everybody in HIV care.

Treatment started within 91 days

These data reflect how quickly people newly diagnosed, receive treatment.

Viral suppression

Viral suppression is defined as having a viral load under 200 copies/mL.

Needs of people living with HIV

The proportion of “need” was defined as the percentage of people with HIV who stated their need for a service, out of all those who responded to the question.

Indicator Definition

New HIV diagnoses

The data measures all new HIV diagnoses in England.  People can live with HIV infection for many years.  This means that new HIV diagnoses are not necessarily infections that have been recently acquired.

Exposure, age group, ethnic group, geographic centre/region of diagnosis.

Data for local authorities are for adults only (15+ years).

Late diagnoses

Adults (aged 15 years and over)  only. The data measure the percentage and number of HIV diagnoses that are made with CD4 count <350 cells within 91 days of diagnosis, which is indicative of a late stage of infection.

A person diagnosed late has been living with an undiagnosed HIV infection for around three to five years and is more susceptible to infections compared to a person with a higher CD4 count.  People diagnosed late have a ten-fold risk of death compared to those diagnosed promptly.

This measure may contain a proportion of people (between 5-20%) who acquired HIV shortly before diagnosis.  These individuals may have CD4 counts temporarily <350 cells.

Breakdown: exposure, age group, ethnic group, geographic region of diagnosis.

Data for local authorities are presented for three years combined due to small numbers.

Living with diagnosed HIV

The rate of people living with a diagnosed HIV infection per 1,000 people aged 15-59 years.

Rates are categorised as follows:

  • Extremely high >5 per 1,000
  • High 2-5 per 1,000
  • Lower <2 per 1,000.

Areas with high and extremely high HIV prevalence should expand HIV testing services outside of sexual health settings in accordance with NICE and BHIVA testing guidelines.

Breakdown: geographic region.

Antiretroviral coverage

The number of people taking antiretroviral medicine at their last clinic attendance divided by everybody in HIV care.

Treatment started within 91 days

These data reflect how quickly people newly diagnosed receive treatment.

Viral suppression

A viral load under 200 copies/mL.  A person who has suppressed virus at this level is unable to pass on HIV infection to sexual partners.

Needs of people living with HIV

The needs of people living with HIV are diverse and the extent to which these needs are assessed, planned for, and met directly impact on the overall health and well-being of the patient.

In 2017, the Positive Voices survey asked people whether people had used specific services (29 in total) in the previous 12 months, and whether or not they had received that service.

The proportion of “need” was defined as the percentage of people with HIV who stated their need for a service, out of all those who responded to the question. The proportion of “unmet need” was defined as the percentage of people with HIV who did not receive it, out of those who stated they needed the service.

These data has been provided by Positive Voices. This is the most recent data available.